Rumination syndrome reddit
Rumination syndrome reddit. I can definitely make myself do it, but I try not to for obvious reasons (and PPIs help a lot to control it). So my guess is hot/cold food and hot/cold liquids probably feel more uncomfortable than room temperature food to digest/eat, resulting in the Rumination trigger. My big main symptom is food regurgitation. Rumination is usually subconsciously developed in response to uncomfortable abdominal sensations as a way to relieve the pressure. I have felt so alone in my rumination syndrome my whole life. See full list on mayoclinic. The answer is to retrain your brain. Since I’ve started, I’ve developed rumination syndrome that’s gotten progressively worse. I’ve been doing carnivore/keto for about a year and started intermittent fasting alongside that a few months ago. r/ruminationsyndrome: For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who … I myself have recovered from rumination syndrome following surgery- and ever since this I have been fascinated by how different everyone's experiences are and how much different advice there is. The doctors assumed it was reflux, not even considering rumination. I have feeding tube because I can’t keep anything down so I was becoming malnourished 1 - If your manometry results are abnormal, is that potentially confirmation of rumination syndrome? 2 - Are they trying to trigger regurgitation during the manometry test? (All I would need to do is drink too much water quickly lol. Referred to SLP for Behavioral Therapy and prescribed Dexilant, Famotidine, Pantoprazole. I fixed it myself by reading academic research papers on it (you can too). I can really relate. ) 3 - For the 24hr test, did they want you to intentionally eat foods that may cause reflux? 15 votes, 15 comments. I can barely eat anymore and I'm losing weight so rapidly. For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. Diaphragmatic breathing does help a little. at around 11-13 i was also severely constipated so i was diagnosed with acid reflux because those are commonly linked. My son (19 months) has just been diagnosed with rumination syndrome. I'm 20 years old and have had Rumination for the past year now. Rumination syndrome is not well understood and her generalizations are borderline offensive. Also make sure he is staying hydrated Gatorade or broth can be very very helpful. Please help me . Acid is 1 component of destruction when it comes to conditions like GERD or Rumination syndrome. This article will focus on the importance of history taking to diagnose rumination syndrome and review treatment strategies including breathing and relaxation skills. Often when I eat a large meal and I’m full a few minutes after bite size amounts of chewed up food comes up, it is not acidic or painful so I don’t think I’m vomiting. Also, if he watches tv after eating it may trigger an episode. When I overeat It tends to be really bad, but what comes back up isn't vomit, it's just the same food I just swallowed, no different taste or texture or anything. Aside from that I don’t know which foods DON’T come up, but foods to avoid would be your trigger foods if you have any. I wanted to know something, taking into account that I'm a bulimic. u/Interesting_Hand_132. Members Online I’ve been vomiting up everything for 8 months i think i have rumination syndrome because i fit all the symptoms, it started when i was around 9 and now im 15 and it's still happening. Have GERD, Supragastric Belch and Rumination Syndrome. I remember being 8 and always rechew and swallow my food and thought it was normal. It’s most common to see a diagnosis of rumination disorder in infants, young children, and individuals with intellectual disabilities. The problem is I don't want to lose more weight because my bmi is already extremely low (12) and last year when I went lower than bmi 12 I didn't even feel human anymore. Also I decided to finally search up what it means today and it gave me rumination syndrome and I started looking it up and I saw ppl with stomach tubes and I’m so scared lmao is it that bad? And I’m too scared to ask a doctor about it bcuz i don’t want them to diagnose me with bulimia💀 So after watching the Diagnosis episode about Rumination Syndrome and reading a lot of the information out there, I had some thoughts in regards to how my experience with Rumination has been. Hello, I'm wondering if anyone else suffers from constant abdominal distension/bloating due to rumination syndrome. Members Online Xvanityinsanityx I’ve had rumination syndrome for almost three years (many times a day, getting to the point that I couldn’t keep water down, needed a feeding tube, and developed anorexia). So it is possible for both factors to be in play. i also have ehlers danlos I just had a test (manometry and 24hr ph impedance) which showed evidence of both rumination AND acid reflux. I was diagnosed with rumination syndrome 3 years ago. hi, i was recently addicted to purging (because of ARFID). I feel contractions in my stomach that practically forces the food I just ate back up. Starting on Monday, I will be doing televists with the Columbus Rumination Clinic and we will be doing therapy sessions to work on my rumination. The key thing to consider though is this: rumination syndrome is a pretty useless diagnosis at the moment, as there's no solid treatment for it. And it’s like I’m using Rumination to help that eating disorder. However, it is an involuntary action for most people, including me. I live in south Yorkshire in the UK and I've recently been diagnosed with rumination syndrome and I am struggling to keep food down still and it is effecting my mental health does anyone know of any people who can deal with rumination syndrome and dosent cost anything because I don't have any money Rumination syndrome is definitely related to stress and anxiety in my experience. org Aug 3, 2023 · Rumination disorder is a disorder characterized by an individual’s uncontrollable and frequent regurgitation of food. I have c-ptsd and I'm fairly sure that my RS is tightly linked to it. For me, it goes something like this. The group would be ~1 hour long and cost $15-25 sliding scale. About two months ago we had an extented stay at childrens hospital where we fully expected for her to be finally and officially diagnosed with CVS. I am a 19 year old healthy male, What you just read in the title is correct, it's not a typo nor this post is to waste time of others or seek unhealthy attention, I got some serious concerns, if you could hear me out and maybe help me understand myself a little more, It will mean a lot since I have never spoken about this to anyone before, literally no one It’s hard to explain. it happens pretty much every single time i eat, regardless of the food i’m eating. We do not wish this disease on others. The food that is regurgitated is either re-chewed and swallowed, or spit out. I went 7 months without being diagnosed. He has been pukey all of his life and we got hand waved away with a GERD/reflux diagnosis despite my insistence that the spit ups were far beyond the scope of even severe GERD. Not even water. This is repeated until the food's taste is no longer pleasurable (acid, etc). Her supposed 100% certain diagnosis of nutcracker syndrome self-published on Facebook only reinforces the Munchausen’s. I’ve been living with this for 25 years and every day I’m hoping it doesn’t happen and trying to take steps to prevent it. Additionally, due to some IBS, I've been keeping a food diary and I've started to notice that my rumination overwhelmingly gets triggered by gluten-rich foods (I realised to my surprise that I frequently ruminate bread and pasta but almost never I've had Rumination syndrome since i was a young boy. I was wondering if anyone knew of an established link between rumination syndrome and trauma, especially childhood neglect/abuse? I've always been curious to what extent rumination is physical and how much psychological factors play a role. they gave me pills and sent me on my way for decades. Occasionally however, it will be this sort of black/brown slimey goop. I've had rumination for 14 years and I hardly noticed it anymore. So I've been trying to get over this rumination syndrome from all different angles. If this is what you are struggling with then my best advice is to re-chew and re-swallow your food. Okay so I am 18 F and from about ages 11-15 i regurgitated EVERYTHING i ate. I am recently learning that I suffer from rumination syndrome. Members Online DoIHaveRSGlottis Posted by u/SeaCash8068 - 6 votes and 10 comments I've worked with many clients with rumination syndrome and have compiled this guidebook to help people heal from Rumination Syndrome. Members Online People with rumination syndrome/ADHD: any other body parts you can "control"? I always brought back ice cream or sweats when I was a kid. Anyway, I've been doing some research on rumination syndrome and I think that fits the bill. Living with rumination syndrome. The titles are usually like "5 Eating disorders you haven't heard of" or "The eating disorder that causes your child to re-chew and re-swallow food" My doctor never refered to RS as an ED but a lot of somewhat credible medical sites say it's an ED. im not sure how to go about it so . The vomiting is so bad I can’t keep anything down. It's important to start the stomach lightly as heavy meals are very hard to digest after days of an empty stomach. I'm thinking about starting a virtual RS support group to share education/tools to manage RS and for people to connect with one another. I am wondering if anyone else dealing with Rumination syndrome experiences the regurgitation as fully digested, highly acidic stomach contents. ) It is a tricky one with your healthy weight loss journey, as obviously rumination is a less healthy way to lose weight. Acid Reflux was my diagnosis. I think since I was approx 13 years old I have suffered from rumination syndrome. Recently I've begun to see Rumination syndrome being included in articles about eating disorders. Would anyone be interested in joining? For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. Have you tried to learn abdominal breathing? Rumination syndrome has been studied. Rumination syndrome is difficult to diagnose as everything else needs to be ruled out first. It's more of a cough or a burp and it's just there. As stated, I suffer from Rumination Syndrome. As an adult, I still struggle. In the sense of the body's behavior of regurgitating food, it is like bulimia. In simple terms, I regurgitate food that I've already eaten, chew it up again, and swallow it. What we do know through studies is that it is a subconscious reflex our brains learn to do. Members Online My daughter was diagnosed with rumination syndrome. Posted by u/Proof-Clerk-1828 - 1 vote and 1 comment Source: I've lived most of my life with rumination syndrome. I keep getting severely dehydrated and have to go to hospital just to get an iv drip to stay hydrated. Then my doctor got annoyed with me for self diagnosing something he had never seen before. I’ve had rumination syndrome for almost three years and now have anorexia. my mom sent my doctor something about rumination syndrome but i don’t think i have it. Doesn't have a taste or smell, just goop. I have an 18-month-old grandson that has been diagnosed with rumination syndrome. I’d feel fine and would be able to continue a normal life without food regurgitation. Once the food is back in the mouth, the person may chew it and swallow it again, or spit it out. Members Online Gerd confusion It was just brought to my attention that people with Ehlers-Danlos syndrome often have a “similar” thing and to think of it I do have quite a few [not all] symptoms of Eds but I’ve never been diagnosed with it and I’ve had rumination since I was very little and I’m 35 now. Rumination syndrome (also known as rumination disorder or merycism) is a feeding and eating disorder in which undigested food comes back up from a person’s stomach into his or her mouth (regurgitation). It can be quite relaxing and you could always just pause for a moment and do it, and try to calm your mind. But it’s basically a regurgitation, but people who have it spit out the food because they’d rather just get it over with than regurgitating it over and over again because that’s nasty. If we're gonna invoke gastroparesis, I'd favor CHS over gastroparesis assuming you've been on long-term marijuana. I almost always reswallow and don't focus on it. Rumination Syndrome is where the food comes up on its own, without the person doing it on purpose. I have rumination syndrome I hope some of this helps your son. My rumination has gotten to a point where I instantly throw up and can’t keep anything down. Log In / Sign Up; Advertise on Reddit For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. What's the difference between rumination syndrome and GERD? GERD is just acid and rumination is acid with food?? I personally want to know because I'm kinda worried about Barrett's Esophagus, so I wanna know which one I actually suffer from. Hi there. Pro-recovery space for bulimia, binge eating, restricting, anorexia and other… Hi, I'm a registered dietitian that works with rumination syndrome and other digestive issues. i couldn’t even swallow a tiny pill in my worst one This will stop the bad symptoms of rumination syndrome. My daughter has the traditional undigested regurgitation directly after a meal, but it can continue for hours and ends up being more like traditional vomiting. Like a really crappy loot box. Undigested food and liquids and even just acid if I haven't eaten automatically come up soon after I've eaten and still hours later. i’m now realizing that i didn’t/dont really meet the criteria for acid reflux and i don’t really remember why i was diagnosed with it besides Well, hello. i feel like my vomiting does have force and i get nauseous before, but it happens almost immediately after i eat. She suffers from occasional bleeding in the stool believed to be because there is lack of significant food making into her intestine and making things harder and more difficult to pass. Our daughter has been suffering since she caught covid in Nov 21 with rumination syndrome amongst other issues, only recently diagnosed after being misdiagnosed, had a lot of testing all normal results apart from mamotery and 2nd ph test finally confirming the diagnosis, she usually swallows her food/drink back down but has relapses were she cannot control it, 4 so far since her journey began hello, i have been vomiting everything i eat for a few months now, but i get nauseous before. even when i don’t vomit, ill ruminate it continuously and just re-swallow. 24M here and just discovered about rumination disorder today. Instead, she was diagnosed with Rumination Syndrome. People around me believe that it may be connected to past trauma that I endured. For anyone with rumination syndrome or who thinks they may be suffering… That's basically the biggest difference between rumination and any other digestive issue. Do I have rumination syndrome? I’m ( girl 14) not concerned honestly I don’t think this is causing me any issues. So I figured I would share those! In general, I've always seen Rumination framed as something that people suffer from, and something that is involuntary. Rumination syndrome is basically a reflux I believe. Mine is pretty discrete and nobody in public notices (my family didn't even know that it was happening for years). I struggle with rumination when it comes to solid or raw foods. Rumination doesn't have an associated acidic taste unless your regurgitating the same food for an hour or more. Hi, I'm so happy to have found a place to talk about Rumination Syndrome. I'm 28 years old and I've had this syndrome for most of my life My stomach is always very bloated no matter what I eat and I wonder if it's due to the syndrome. . I can just puke 5 times easily. I believe my anorexia developed as a result of deep stress, but rumination gave it “legs” - I could easily purge and it made disordered behaviours more simple. In the early days, we thought this was reflux. Thanks for the encouraging update! That's really good to hear. That is what the majority of people do, I think. I developed rumination syndrome six years ago (I assume because of stress related to an underlying autoimmune disease, no formal diagnosis for either because doctors are impossible to see). Make sure not to over-fill yourself when you eat as this makes it so much harder to keep food down. My body can’t tolerate it anymore, but it’s decreased significantly once I started eating soft foods (eggs, high water/low FODMAP veg, yogurt, very well cooked veg) and liquids. It's some what of a new diagnosis that is still being heavily studied. We got in with a new doctor and he believes it's rumination and will be scoping and doing a 24hr test. It is our brains that cause the rumination. I've always had terrible anxiety and gotten nauseous when I'm anxious a lot, but I just started throwing up out of the blue months ago. The sensation of wanting to ruminate was very uncomfortable and so it does require a lot of self control to not stop biting the pencil for an hour and to let the uncomfortable feeling pass, rather than just taking the easy way out and just regurgitating it to instantly feel better. my parents are bringing me to the doctors next week and i have no idea what to tell them, i got diagnosed with bulimia a good while ago and i feel like if i bring it up they'll just dismiss me and say it's my ED and not RS. I’m now able to eat (though I still ruminate) and do my best to reswallow. I've always thought of it as 're-chewing' my food. Anyone have toddlers with rumination syndrome? For the last 2. Did any of you experience this before your diagnosis with rumination syndrome? When was rumination syndrome discovered? When I got diagnosed with it in 2008 at first my doctor thought I was lying. I understand Lashay and Jodelle’s aversion to the rumination diagnosis because of how it was presented as psychosomatic, but it is a very real mechanical problem. This one symptom outweighs the others by a million. i’ve been in the hospital on an iv for low potassium because i’d been expelling As I grew up, things got better, but I would still have instances of vomiting. Sep 2, 2016 · Rumination syndrome (RS) can occur as a primary disorder or as a conditioned response in the setting of other vomiting disorders, particularly gastroparesis. So it's unclear what can be done to prevent it. **Rules** * Adults only * No trolling, harassing, encouraging harm, or otherwise being inappropriate towards other users * No direct or np linking to other subs not on our list of related links, please screenshot if you must discuss front page and non-eating I have had RS for 17 years, with varying degrees of severity and impact on my life. While rumination syndrome can affect mental health, no one is purposely throwing up. The good news about rumination syndrome is that it doesn't seem to do much physical damage. 29 30 This event may be relatively minor and swiftly forgotten but it is theorised I've had gastroparesis for two years and I'm guessing this is the reason. I vomit over 100 times a day and I don’t eat a lot by mouth because I have a feeding tube. After all, if we spat out all the food that came up then we’d all lose an unhealthy amount of I have cptsd and and an eating disorder. He never responded to any treatments and continued to regurgitate food. My gf (24) has been struggling and coping with rumination for a few years, but the last few months have been especially tough, with her rapidly losing weight because of how terrible it is for her to swallow back those mouthfuls of acidic, slimy food remains for hours after every meal. 5 years we have been told our son has EoE. We would like to show you a description here but the site won’t allow us. I sometimes even ruminate saliva. Hi everyone, I am wondering if anyone else has rumination syndrome, or might want to look into it if you have similar symptoms, as I have just… oOo boy, this sounds interesting. I find that if I over eat or even just eat a normal amount, it’ll come back up in small amounts, to which I’ll re-chew it and swallow it Hey hey, I have rumination syndrome and have had it for a pretty long time. eat 10 to 30 minutes later, regurgitate have to chew and swallow about 5 to 15 minutes apart For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. Members Online I’ve been vomiting up everything for 8 months Good luck! How old is he? The other night, due to overeating, I had the urge to ruminate again so I bit on a pencil. i haven’t been able to go to a full day of school in 3 months, and if i push myself too hard i will have a flare up which usually means vomiting up EVERYTHING. Recently, regurgitation of food became so severe that with other factors caused a Necrotic Pneumonia due to Aspiration of Food contents. I have had GI problems my whole life (I am almost 20) and my rumination has gone undiagnosed until December of 2019. For me personally, I do experience acidic throw up. Your valuable input will help researchers better understand and treat chronic stomach symptoms, including rumination syndrome. I recommend reading some articles about it to get the full scope. Expand user menu Open settings menu. Recently, I have been talking to my therapist about potentially having ADHD, and we talked about some of the well-known and lesser-well known ADHD symptoms, which include the ability to focus and unfocus your eyes on command, the ability to make your ear rumble on command, etc. Guide to Understanding and Treating Rumination Syndrome I tried to include citations when possible but some information comes from first-hand experience or directly from clients personal experience. I've been looking for anything to help me but as I'm sure you all know there's pretty much nothing out there on the internet. Members Online InternationalIce9685 hi— i’m 18 f, my health has been on the decline lately (i’m 5’7” and about 106 lbs). I have noticed certain foods (bananas) and smells may trigger an episode. i have a history of anorexia but have been recovered for almost 2 years. We are here for support in the struggle that is dealing with it. How can rumination syndrome affect my diet, fasting, and overall nutritional intake? Is this something I should be worried about? For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. i recovered in january, but in february i developed multiple chronic illnesses including POTS and rumination syndrome. Often after eating I will "regurgitate" whatever I had just consumed. i’ve struggled w rumination for a little over a year. And maybe your belly as a side effect! (Even if it’s doesn’t help the rumination, it is good to calm down anyway. the regurgitation carried on for hours. Anything they try may be a little experimental, especially in America I hear of a lot of unusual things being used that have never been suggested to me by doctors in the UK. I don’t know if it’s just Rumination syndrome or an eating disorder. Rumination is a learned behavior/reflex we do subconsciously and so pills are not the answer. The physical mechanism for it is related to our belch reflex. Members Online InstructionPretty799 Simply complete a 15-20 minute online questionnaire that includes questions about your general demographics, symptoms, and mental health. How can I help prevent rumination syndrome? Experts aren't sure why rumination syndrome starts in the first place. 822 subscribers in the ruminationsyndrome community. All of the symptoms line up; it's super embarrassing, and while I could "technically" keep the regurgitated food down, it will make me feel very sick and uncomfortable, so I usually end up spitting it out. I’ve started to focus more on trying to improve my physical health and recover. This was the tests that pointed them to rumination syndrome. There’s not a lot of info on it and it’s different for everyone. Jan 11, 2022 · Rumination syndrome is an acquired behavioural disorder and, in some cases, a detailed history can reveal a particular priming episode of psychological stress or gastrointestinal (GI) upset (eg, gastroenteritis) which occurred prior to rumination being noticed. Rumination syndrome is also commonly combined with anxiety and depression. I'd like to hear a medical professional weigh in on this one. In a way I have made this community for myself, however I hope someone else with rumination syndrome finds this and maybe it would help them too. He'll be weak from not eating so lots of sleep to regain strength is also important. I have a ton of gerd symptoms but literally nothing is helping it. While in lockdown I was a lot more relaxed (no social anxiety and nothing I had to do, I know this wasn’t the case for everyone) but now I’m back to life I’m stressed and anxious again and my RS has come back really strong. We are not a recovery Subreddit. But recent years I been having insecurity about my weight, like I’m scared to gain. 15 votes, 19 comments. Last night when I happened to google 'is it normal to regurgitate food', I quickly found the wikipedia page of the syndrome and I was shocked to find myself being described in textbook detail. I have anorexia but never bulimia. Members Online Rumination Disorder - What Foods to Eat that Stay Down For anyone with rumination syndrome or who thinks they may be suffering with it to share support and talk to people who understand. I remember being hospitalized for being able to essentially vomit on command. It sounds like rumination sydrome, based on the description of what you are bringing back up. View community ranking In the Top 20% of largest communities on Reddit. 42K subscribers in the bulimia community. I use mint gum to delay the rumination. I am a science teacher by trade so I try to observe details. It was a really rough time. Rumination syndrome is classified as both an eating disorder and a disorder of gut-brain interaction. Oct 8, 2023 · Rumination syndrome is a disorder involving regurgitation of undigested food. When we went to the doctor a couple years ago, he said it was most likely Rumination Syndrome. I have rumination syndrome and EDS! I also had bulimia (but think that kind of came about as a result of ruminating as the rumination started first) Always wondered if there was a link between stretchiness and something with the stomach valve maybe? Ice cream is the #1 trigger for Rumination for me. Rumination by definition is a voluntary process or a “reflux action which can be learnt” however, a lot of people with rumination disorder don’t consciously make an effort to regurgitate. I'm not but if the nature of your regurgitation is like vomiting and vomiting can be tied to psychological cues like seeing someone else vomit or being told an upsetting story while eating, I would imagine somehow you've somehow conditioned yourself to experience the reaction directly. However, there is also lots we all have in common. I take amitriptyline Might want to consider cannabis hyperemesis syndrome even though it's not classic. jyykhq mlmkk gatfel lhf fvmdh txpvk jsnx wwwc vqzhwlyy xueai